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#QuarantineLife: A Q&A with Lori and Neil Martin

The past five months have looked different for all of us under quarantine, but what does it look like for a family with an immunocompromised child? Lori and Neil Martin share their experiences in this Q&A.

August 20, 2020
NIH June Survey Now Open

The National Institutes of Health is continuing to monitor the effects of the evolving COVID19 pandemic on individuals with mitochondrial disease in its June survey.

June 5, 2020
Leigh Syndrome International Consortium Awards Grants

The Leigh Syndrome International Consortium awards 179,000 USD to six research teams.

February 4, 2020
UMDF Launches New Grant Cycle

The 2020 cycle of the UMDF Research Grant Program launched Monday, January 20.

January 23, 2020
New Leigh syndrome Grant Cycle Now Open

Seeking independent researchers to submit translational and clinical research proposals for Leigh syndrome-focused Grant Cycle

November 6, 2019
PALS teams up with scientists, clinicians and patient advocacy groups

The International Leigh Syndrome Research Network aims to move fast toward treatments and potential therapies.

September 12, 2019
Patient Registry Gets a New Name

To better reflect its international reach, the Leigh Syndrome Registry has been renamed.

April 2, 2019