The past five months have looked different for all of us under quarantine, but what does it look like for a family with an immunocompromised child? Lori and Neil Martin share their experiences in this Q&A.

The National Institutes of Health is continuing to monitor the effects of the evolving COVID19 pandemic on individuals with mitochondrial disease in its June survey.

The Leigh Syndrome International Consortium awards 179,000 USD to six research teams.

The 2020 cycle of the UMDF Research Grant Program launched Monday, January 20.

Seeking independent researchers to submit translational and clinical research proposals for Leigh syndrome-focused Grant Cycle

The International Leigh Syndrome Research Network aims to move fast toward treatments and potential therapies.

Viva la Vida! was overwhelming success.

To better reflect its international reach, the Leigh Syndrome Registry has been renamed.