Patient Registry Gets a New Name

Lindsey Klingensmith
April 2, 2019

To better reflect its international reach, the Leigh Syndrome Patient Registry has been renamed to TRiaLS: The International Registry for Leigh Syndrome.  

To date, more than 100 patients from around the world,including the United States, Australia, Canada, Great Britain, India, Japan,Venezuela, Romania, Croatia and Poland have joined this highly-secure database that connects patients to qualified researchers and clinicians investigating treatments for people with Leigh syndrome.

“By participating in TRiaLS, you could help researchers and clinicians find the answers they need, while simultaneously finding the answer your family so desperately wants,” said Lori Martin, parent of a child with Leigh syndrome and President of the Board at People Against Leigh Syndrome (PALS).

For more information, or to join the registry, visit

Lindsey Klingensmith

Executive Director

Public relation awesomeness.

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