September 12, 2019
News
PALS teams up with scientists, clinicians and patient advocacy groups to form innovative research network for Leigh syndrome

In an effort to move fast toward treatments and potential therapies, PALS has partnered with four of the world’s leading mitochondrial disease patient advocacy groups to form and fund an international Leigh Syndrome Research Network.

Lindsey Klingensmith
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April 2, 2019
Updates
Patient Registry Gets a New Name

To better reflect its international reach, the Leigh Syndrome Registry has been renamed.

Lindsey Klingensmith
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March 26, 2019
Research
NIH seeks patients for study

NIH is seeking patients for a natural history study of Leigh syndrome and its relationship to infection.

Lindsey Klingensmith
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