Your generous donation will impact the lives of patients through PALS’ support of Dr. Mary Kay Koenig, MD and her team at the Center for the Treatment of Pediatric Neurodegenerative Diseases, and the Leigh Syndrome International Consortium, among other initiatives.
Specifically, over the next year, PALS’ funding priorities include:
-TRiaLS: The International Registry for Leigh Syndrome. Funded by PALS and managed by Dr. Mary Kay Koenig's team, TRiaLS is a highly secure patient registry that quickly connects patients to clinicians and researchers seeking treatments and cures for Leigh syndrome. There are currently more than 150 patients from around the world, including the United States, Australia, Canada, Great Britain, India, Japan, Venezuela, Romania, Croatia and Poland on the registry.
- Leigh Syndrome International Consortium. PALS has partnered with the United Mitochondrial Disease Foundation (UMDF), MitoCon (Italy), Mitochondrial Disease oundation (Australia), and the Lily Foundation (Great Britain) to bring together the world's leading clinicians, researchers and patient advocacy groups to improve diagnosis, develop better treatments and hopefully a cure, and optimize clinical care for Leigh syndrome patients. Funds gifted by our organizations are being used for research grants, a natural history study and more.
- Independent Research. PALS committed $25,000 to fund independent research into Leigh syndrome. A Request for Proposals (RFP) was sent out Summer 2021 and closed on Oct. 31, 2021. The grant recipient(s) will be announced before the end of the year.
Tax deductible donations can be made below, by calling Lindsey Klingensmith at 713-248-8782, or by mailing a check to PO Box 7057, Houston, TX 77248.