Lindsey Klingensmith has been named Executive Director of People Against Leigh Syndrome (PALS).
PALS was formed in 2013 after William Martin, son of Neil and Lori Martin, was diagnosed with Leigh syndrome, a genetic neurometobolic disorder that can cause deterioration of the central nervous system, including the brain, spinal cord, and optic nerve. After discovering the disease was progressive and potentially fatal, the Martin Family decided to take action and through PALS has built awareness of this unknown disease. Additionally, PALS has raised nearly $300,000 to support projects like TRiaLS: The International Registry for Leigh Syndrome,a highly-secure database that enables qualified researchers and clinicians to connect with patients for International Review Board (IRB) approved research projects and clinical trials.
“In the past six years, People Against Leigh Syndrome has made a tremendous and positive impact in the Mitochondrial Disease community,” said Mary Kay Koenig, M.D., pediatric neurologist at UTHealth/Children’s Memorial Hermann. “The appointment of Ms. Klingensmith as executive director is sure to propel the organization forward and further PALS’ mission to support clinicians and researchers as they strive to develop viable treatments and ultimately a cure for Leigh syndrome.”
As executive director, Klingensmith will lead the strategic vision of the organization, working closely with the Board of Directors, while also managing day-to-day operations,including fundraising. Additionally, she will be responsible for raising awareness of PALS and Leigh syndrome specifically, as well as educating key stakeholders about the disease through a mix of media relations, social media, events, and more.
Klingensmith began her career in healthcare in 2007 when she joined the ranks at Memorial Hermann Health System. During her 12-year tenure, she developed and managed communications strategies around major system-wide and campus-based initiatives. Prior to that, she served in a variety of roles at VOLLMER Public Relations for a diverse roster of clients.
Klingensmith and her husband Jesse reside in the greater Houston area with their children.