PALS, in collaboration with fellow mitochondrial disease patient groups The United Mitochondrial Disease Foundation, Mito Foundation, Lily Foundation and Mitocon have formed the Leigh Syndrome International Consortium with the intent to positively impact the lives of Leigh syndrome patients by improving diagnoses, developing treatments and cures, and optimizing clinical care.

The consortium has already raised more than $1 million and is pleased to announce the launch of a Leigh syndrome-focused grant cycle.

Independent researchers are encouraged to submit translational and clinical research proposals with budgets not to exceed $50,000 over 12 months. The cycle will close on November 25, 2019 and, after peer review, awards in total of up to $150,000 are expected to be announced before the end of the year.

Interested investigators may find the Request for Proposals and begin an application here.

Additional funding programs for this multi-year project are under development with the assistance of an expert Scientific Steering committee. Questions about the grant cycle should be sent to grants@umdf.org.

Lindsey Klingensmith

Executive Director

Public relation awesomeness.

Latest News

PALS donates $30,000 to Houston clinic

Dr. Mary Kay Koenig, M.D., accepts donation on behalf of UT Mitochondrial Center of Excellence

Lindsey Klingensmith
September 15, 2020
Learn More
#QuarantineLife: A Q&A with Lori and Neil Martin

The past five months have looked different for all of us under quarantine, but what does it look like for a family with an immunocompromised child? Lori and Neil Martin share their experiences in this Q&A.

Lindsey Klingensmith
August 20, 2020
Learn More