PALS, in collaboration with fellow mitochondrial disease patient groups The United Mitochondrial Disease Foundation, Mito Foundation, Lily Foundation and Mitocon have formed the Leigh Syndrome International Consortium with the intent to positively impact the lives of Leigh syndrome patients by improving diagnoses, developing treatments and cures, and optimizing clinical care.

The consortium has already raised more than $1 million and is pleased to announce the launch of a Leigh syndrome-focused grant cycle.

Independent researchers are encouraged to submit translational and clinical research proposals with budgets not to exceed $50,000 over 12 months. The cycle will close on November 25, 2019 and, after peer review, awards in total of up to $150,000 are expected to be announced before the end of the year.

Interested investigators may find the Request for Proposals and begin an application here.

Additional funding programs for this multi-year project are under development with the assistance of an expert Scientific Steering committee. Questions about the grant cycle should be sent to

Lindsey Klingensmith

Executive Director

Public relation awesomeness.

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