Post-COVID19 Vaccine Registry Opens for Patients with Mitochondrial Disease

Lindsey Klingensmith
June 16, 2021

The National Institutes of Health (NIH) Metabolism, Infection and Immunity (MINI) Section is asking people with mitochondrial disease who have already received the COVID19 vaccine to participate in its new initiative - the Post-COVID19 Vaccine Registry.  

The purpose of the survey is to better understand the side effects and experiences after the COVID19 Vaccine for people with mitochondrial disease.

Responding to the questionnaire takes approximately eight minutes and is entirely voluntary and anonymous.

You are eligible to participate in the survey if you:

1. Are a person with mitochondrial disease OR the caregiver of a child with mitochondrial disease

2. Are 18 years of age or older

3. Have received at least one dose of the COVID19 vaccine*

 *Please note, it is preferred that you wait until >2 weeks after your last dose to complete the questionnaire.

Responses to the survey (or lack thereof) will have no bearing on your relationship with the NIH. The aggregate survey data will be presented at meetings and published.

To participate, visit

Lindsey Klingensmith

Executive Director

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